Tuesday, February 11, 2014

Welcome Home…

…Now get to work. 

This morning I had my usual early morning visit from the surgeon, and the surgeon said, "No more monkeys jumping on the bed." 

 It was more like , "Get your ass up and out of here."  Since the modified swallow test was a failure, his work was done.  He requested an ENT doc to visit to help figured out this next step.  Otherwise we were done, dismissed.  I was discharged with my feeding tube intact.  The crazy thing is that back when I said I couldn't swallow I meant things got stuck in my esophagus.  Now something happened to the muscles behind and immediately under my tongue.  They stopped working, allowing foods to go down the wrong way.  How nuts is that?  And nobody knows how this happened.

So, they sent me home.  The plan is for a nurse to provide home care along with a Speech therapist to help with the swallowing exercises. How long will this take?  No one knows

As one might imagine, we are very frustrated.

All I can say is that I am determined to test drive this new esophagus.  It may take a while but… As one crazy SOB said, "But I tried, didn't I? Goddamnit, at least I did that."

Here I am at my dinner table.

Watch out if anyone ever tells you, "no eating or drinking after midnight."

2 comments:

  1. well you are looking remarkably fit for 1 week after major surgery, hang in there, even superman has to be patient.

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  2. Yeah, man, you are kicking butt! You have come a long way in just over a week. The body and brain take a little while to adjust after a thing like that. The frustration is understandable, but the evil #(&*^# that was invading your body is out and you are "clean." Major victory!

    Rock on, amigo....

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